Tag Archives | Rosalyn Porcano

Rosalyn Porcano 2 - Vision Beyond Sight with Dr. Lynn Hellerstein

Save Sight Now: Turning a Family’s Journey into Hope for Usher Syndrome Research with Rosalyn Porcano (Episode #170)

Dr. Lynn Hellerstein talks with Rosalyn Porcano, co-founder and Chief Development Officer of the Save Sight Now Foundation, mother, and rare-disease advocate. After her daughter was diagnosed with Usher syndrome type 1B (USH1B), Rosalyn and her husband, Justin, turned their family’s challenges into a mission to accelerate Usher syndrome studies and research. Discover their journey, […]

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